Psychological well-being among mothers of children with autism spectrum disorder: The role of family function

Dinie Ratri Desiningrum, Dewi Retno Suminar, Endang Retno Surjaningrum

Abstract


The mother of children with autism is the most vulnerable person to have stress and depression. Therefore they need positive psychological well-being to optimize the caring of children. Family is the primary environment in supporting the mother's mental health. This study aimed to find out how family functions correlate with psychological well-being among the mother of a child with autism. A quantitative approach was applied, involving 142 mothers who had autistic children selected through purposive sampling techniques. The data was collected using Family Functioning and Psychological Well-being instruments. The data was then analyzed with regression analysis. The results show that family functioning and psychological well-being are correlated significantly. The more effective family function based on the perception of the mother, the higher the psychological well-being of the mother, and vice versa. Problem-solving, communication, affective response, and role are dimensions that influence psychological well-being, while behavior control and affection dimensions are not significant. The results of the study can provide input suggestions for the government, such as through family empowerment regarding the importance of supporting and optimizing the role of family members to stimulate the psychological well-being of mothers of children with an autism spectrum disorder.

Keywords


autism child; family functioning; mother; psychological well-being

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References


Altiere, M. J., & von Kluge, S. (2009). Family Functioning and Coping Behaviors in Parents of Children with Autism. Journal of Child and Family Studies, 18(1), 83-92. https://doi.org/10.1007/s10826-008-9209-y

Benson, P. R. (2010). Coping, distress, and well-being in mothers of children with autism. Research in Autism Spectrum Disorders, 4(2), 217-228. https://doi.org/10.1016/j.rasd.2009.09.008

Bessette Gorlin, J., McAlpine, C. P., Garwick, A., & Wieling, E. (2016). Severe Childhood Autism: The Family Lived Experience. Journal of Pediatric Nursing, 31(6), 580-597. https://doi.org/10.1016/j.pedn.2016.09.002

Bray, L., Carter, B., Sanders, C., Blake, L., & Keegan, K. (2017). Parent-to-parent peer support for parents of children with a disability: A mixed method study. Patient Education and Counseling, 100(8), 1537-1543. https://doi.org/10.1016/j.pec.2017.03.004

Cappe, E., Wolff, M., Bobet, R., & Adrien, J.-L. (2011). Quality of life: a key variable to consider in the evaluation of adjustment in parents of children with autism spectrum disorders and in the development of relevant support and assistance programmes. Quality of Life Research, 20(8), 1279–1294. https://doi.org/10.1007/s11136-011-9861-3

Chan, K. K. S., & Lam, C. B. (2016). Parental maltreatment of children with autism spectrum disorder: A developmental-ecological analysis. Research in Autism Spectrum Disorders, 32, 106-114. https://doi.org/10.1016/j.rasd.2016.09.006

Chan, K. K. S., Lam, C. B., Law, N. C. W., & Cheung, R. Y. M. (2018). From child autistic symptoms to parental affective symptoms: A family process model. Research in Developmental Disabilities, 75, 22-31. https://doi.org/10.1016/j.ridd.2018.02.005

Cox, C. R., Eaton, S., Ekas, N. V., & Van Enkevort, E. A. (2015). Death concerns and psychological well-being in mothers of children with autism spectrum disorder. Research in Developmental Disabilities, 45-46, 229-238. https://doi.org/10.1016/j.ridd.2015.07.029

Cram, P. H., Warfield, M. E., Shonkoff, J. P., Krauss, M. W., Sayer, A., Upshur, C. C., & Hodapp, R. M. (2001). Children with disabilities: A longitudinal study of child development and parent well-being. Monographs of the Society for Research in Child Development, 6(33), 1-126.

Derguy, C., Roux, S., Portex, M., & M'bailara, K. (2018). An ecological exploration of individual, family, and environmental contributions to parental quality of life in autism. Psychiatry Research, 268, 87-93. https://doi.org/10.1016/j.psychres.2018.07.006

Desiningrum, D. R. (2016a). Psikologi anak berkebutuhan khusus. (G. Ilmu, Ed.) (1st ed., Vol. 3). Semarang: Psikosains.

Desiningrum, D. R. (2016b). Psikologi anak berkebutuhan khusus (Psychology of childreen with special need).

Desiningrum, D. R. (2018). Grandparents' roles and psychological well-being in the elderly: a correlational study in families with an autistic child. Enfermeria Clinica, 28. https://doi.org/10.1016/S1130-8621(18)30175-X

Desiningrum, D. R. 2010. (2010). Family's Social Support and Psychological Well-Being of the Elderly in Tembalang. Indonesian Psychological Journal, 26(1), 61-68.

Duarte, C. S., Bordin, I. A., Yazigi, L., & Mooney, J. (2005). Factors associated with stress in mothers of children with autism. Autism, 9(4), 416-427. https://doi.org/10.1177/1362361305056081

Epstein, N. B., Ryan, C. E., Bishop, D. S., Miller, I. W., & Keitner, G. . (2003). The McMaster Model: A view of healthy family functioning. In Normal Family Process: Growing Diversity and Complexity 3rd Ed (In F. Wals, pp. 581-607). New York: Guilford Press.

Estrem, H. H., Thoyre, S. M., Knafl, K. A., Frisk Pados, B., & Van Riper, M. (2018). "It's a Long-Term Process": Description of Daily Family Life When a Child Has a Feeding Disorder. Journal of Pediatric Health Care, 32(4), 340-347. https://doi.org/10.1016/j.pedhc.2017.12.002

Fahrudin, A. (2005). Pengukuran indikator keberfungsian keluarga. In Lokakarya Penyusunan Indikator Kesejahteraan Keluarga. Bandung.

Gallo, A., Wertz, C., Kairis, S., & Blavier, A. (2018). Exploration of relationship between parental distress, family functioning and post-traumatic symptoms in children. European Journal of Trauma & Dissociation, 1-9. https://doi.org/10.1016/j.ejtd.2018.06.001

Garrecht, M., & Austin, D. W. (2011). The plausibility of a role for mercury in the etiology of autism: a cellular perspective. Toxicological & Environmental Chemistry, 93(6), 1251-1273. https://doi.org/10.1080/02772248.2011.580588

Grace, A., & Gleasure, R. (2017). Supporting the critical role of family carers in wellness management. Health Policy and Technology, 6(2), 242-249. https://doi.org/10.1016/j.hlpt.2017.04.002

Greenlee, J. L., Winter, M. A., & Diehl, J. J. (2018). Family level processes associated with outcomes for individuals with autism spectrum disorder: A scoping review. Research in Autism Spectrum Disorders, 53, 41-52. https://doi.org/10.1016/j.rasd.2018.06.002

Hari Peduli Autisme Sedunia: Kenali gejalanya, pahami keadaannya. (The World Autism Day: Recognize the symptoms, understand the situation). (2018).

Hauser-Cram, P., Warfield, M. E., Shonkoff, J. P., Krauss, M. W., Sayer, A., & Upshur, C. C. (2001). Children with disabilities: a longitudinal study of child development and parent well-being. Monographs of the Society for Research in Child Development, 66(3), i-viii, 1-114; discussion 115-26.

Hsiao, Y.-J. (2016). Pathways to mental health-related quality of life for parents of children with autism spectrum disorder: roles of parental stress, children's performance, medical support, and neighbor support. Research in Autism Spectrum Disorders, 23, 122-130. https://doi.org/10.1016/j.rasd.2015.10.008

Johnson, N., Frenn, M., Feetham, S., & Simpson, P. (2011). Autism spectrum disorder: Parenting stress, family functioning and health-related quality of life. Families, Systems, & Health, 29(3), 232-252. https://doi.org/10.1037/a0025341

Jose, A., Gupta, S., Gulati, S., & Sapra, S. (2017). Prevalence of depression in mothers of children having ASD. Current Medicine Research and Practice, 7(1), 11-15. https://doi.org/10.1016/j.cmrp.2016.12.003

Keyes, C. L. M., & Magyar-Moe, J. L. (2003). The measurement and utility of adult subjective well-being. In Positive psychological assessment: A handbook of models and measures. (pp. 411-425). Washington: American Psychological Association. https://doi.org/10.1037/10612-026

Keyes, C. L. M., Shmotkin, D., & Ryff, C. D. (2002). Optimizing well-being: The empirical encounter of two traditions. Journal of Personality and Social Psychology, 82(6), 1007-1022. https://doi.org/10.1037/0022-3514.82.6.1007

Koydemir, S., & Tosun, Ü. (2009). Impact of autistic children on the lives of mothers. Procedia - Social and Behavioral Sciences, 1(1), 2534-2540. https://doi.org/10.1016/j.sbspro.2009.01.447

Larson, E. (2008). Psychological well being and meaning making when caregiving for children with disabilities: Growth through difficult times or sinking inward. American Occupational Therapy Foundation, 78-86.

Lu, C., Yuan, L., Lin, W., Zhou, Y., & Pan, S. (2017). Depression and resilience mediates the effect of family function on quality of life of the elderly. Archives of Gerontology and Geriatrics, 71, 34-42. https://doi.org/10.1016/j.archger.2017.02.011

Mccreary, L. L. (2014). Dimensions of Family Functioning: Perspectives African American Families of Low-Income Single-Parent. Journal of Marriage and Family, 66(3), 690-701.

Meirsschaut, M., Roeyers, H., & Warreyn, P. (2010). Parenting in families with a child with autism spectrum disorder and a typically developing child: Mothers experiences and cognitions. Research in Autism Spectrum Disorders, 4(4), 661-669. https://doi.org/10.1016/j.rasd.2010.01.002

Miller, I. W., Ryan, C. E., Keitner, G. I., Bishop, D. S., & Epstein, N. B. (2000). , 168-189.

Mitchell, A. E., Whittingham, K., Steindl, S., & Kirby, J. (2018). Feasibility and acceptability of a brief online self-compassion intervention for mothers of infants. Archives of Women's Mental Health, 21(5), 553-561. https://doi.org/10.1007/s00737-018-0829-y

Neff, K. D., & Faso, D. J. (2015). Self-Compassion and Well-Being in Parents of Children with Autism. Mindfulness, 6(4), 938-947. https://doi.org/10.1007/s12671-014-0359-2

O'Brien, S. (2016). Families of Adolescents with Autism: Facing the Future. Journal of Pediatric Nursing, 31(2), 20-213. https://doi.org/10.1016/j.pedn.2015.10.019

Pinquart, M., & Sörensen, S. (2001). Gender differences in self-concept and psychological well-being in old age: A meta-analysis. Journal of Gerontology: Psychological Sciences, 56B(4), 195-213. https://doi.org/10.1093/geronb/56.4.P195

Pratt, K. J., & Skelton, J. A. (2018). Family Functioning and Childhood Obesity Treatment: A Family Systems Theory-Informed Approach. Academic Pediatrics, 18(6), 620-627. https://doi.org/10.1016/j.acap.2018.04.001

Retnowati, S., Widhiarso, W., & Rohmani, K. W. (2003). Peranan keberfungsian keluarga pada pemahaman dan pengungkapan emosi. Jurnal Psikologi UGM, 30(2).

Schulte, M. T., Armistead, L., Marelich, W. D., Payne, D. L., Goodrum, N. M., & Murphy, D. A. (2017). Maternal Parenting Stress and Child Perception of Family Functioning Among Families Affected by HIV. Journal of the Association of Nurses in AIDS Care, 28(5), 784-794. https://doi.org/10.1016/j.jana.2017.05.004

Schwartz, J., Huntington, N., Toomey, M., Laverdiere, M., Bevans, K., Blum, N., & Bridgemohan, C. (2018). Measuring the involvement in family life of children with autism spectrum disorder: A DBPNet study. Research in Developmental Disabilities, 83, 18-27. https://doi.org/10.1016/j.ridd.2018.07.012

Sun, X., Allison, C., Auyeung, B., Baron-Cohen, S., & Brayne, C. (2014). Parental concerns, socioeconomic status, and the risk of autism spectrum conditions in a population-based study. Research in Developmental Disabilities, 35(12), 3678-3688. https://doi.org/10.1016/j.ridd.2014.07.037




DOI: http://dx.doi.org/10.26555/humanitas.v16i2.10981

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