Emotional Competence, Family Social Support and Parental Stress in Mothers of Children with Autism during the Pandemic
DOI:
https://doi.org/10.12928/jehcp.v11i2.22389Abstract
This study was aimed to determine the relationship between emotional competence, family social support and parental stress in mothers of children with autism spectrum disorder (ASD). This research was a quantitative research with correlational method. Purposive sampling technique by distributing questionnaires using Google form resulted in a total of 165 participants who are mothers of children with ASD, as members of therapy centers and schools for children with special needs in Semarang, Solo and Yogyakarta. The data were analyzed using structural equation model (SEM) technique on Lisrel program. This research resulted in two models showing that there are fit model with empirical data. The first model shows that each of emotional competence and family social support had a significant effect on parental stress in mothers of children with ASD. The second model shows the influence of emotional competence on the stress of parenting of children with ASD, with family social support as a moderating variable. The implications of this study are empirical evidence on the importance of family social support and emotional competence for mothers in raising children with ASD to prevent excessive parental stress.References
ABS. (2019, November 29). Disability, ageing and carers, Australia: Summary of findings, 2018. Australian Bureau of Statistics. https://www.abs.gov.au/AUSSTATS/abs@.nsf/Lookup/4430.0Main+Features102018?OpenDocument
Agbaria, Q., & Natur, N. (2018). The relationship between violence in the family and adolescents aggression: The mediator role of self-control, social support, religiosity, and well-being. Children and Youth Services Review, 91, 447–456. https://doi.org/10.1016/j.childyouth.2018.06.016
Alexander, K. (2018). Integrative review of the relationship between Mindfulness-Based Parenting interventions and depression symptoms in parents. JOGNN - Journal of Obstetric, Gynecologic, and Neonatal Nursing, 47(2), 184–190. https://doi.org/10.1016/j.jogn.2017.11.013
Allik, H., Larsson, J. O., & Smedje, H. (2006). Sleep patterns of school-age children with asperger syndrome or high-functioning autism. Journal of Autism and Developmental Disorders, 36(5), 585–595. https://doi.org/10.1007/s10803-006-0099-9
Baker, E., & Jeste, S. S. (2015). Diagnosis and management of autism spectrum disorder in the era of genomics. Pediatric Clinics of North America, 62(3), 607–618. https://doi.org/10.1016/j.pcl.2015.03.003
Bebko, J. M., Konstantareas, M. M., & Springer, J. (1987). Parent and professional evaluations of family stress associated with characteristics of autism. Journal of Autism and Developmental Disorders, 17(4), 565–576.
Benson, P. R. (2006). The impact of child symptom severity on depressed mood among parents of children with ASD: The mediating role of stress proliferation. Journal of Autism and Developmental Disorders, 36(5), 685–695. https://doi.org/10.1007/s10803-006-0112-3
Berry, J. O., & Jones, W. H. (1995). The parental stress scale: Initial psychometric evidence. Journal of Social and Personal Relationships, 12(3), 463–472. https://doi.org/10.1177/0265407595123009
Blacher, J., & McIntyre, L. L. (2006). Syndrome specificity and behavioural disorders in young adults with intellectual disability: Cultural differences in family impact. Journal of Intellectual Disability Research, 50(3), 184–198. https://doi.org/10.1111/j.1365-2788.2005.00768.x
Brasseur, S., Grégoire, J., Bourdu, R., & Mikolajczak, M. (2013). The Profile of Emotional Competence (PEC): Development and validation of a self-reported measure that fits dimensions of Emotional Competence Theory. PLoS ONE, 8(5), 1–6. https://doi.org/10.1371/journal.pone.0062635
Brown, S. M., Doom, J. R., Lechuga-Peña, S., Watamura, S. E., & Koppels, T. (2020). Stress and parenting during the global COVID-19 pandemic. Child Abuse and Neglect, 110(August). https://doi.org/10.1016/j.chiabu.2020.104699
Cachia, R. L., Anderson, A., & Moore, D. W. (2016). Mindfulness, stress and well-being in parents of children with autism spectrum disorder: A systematic review. Journal of Child and Family Studies, 25(1), 1–14. https://doi.org/10.1007/s10826-015-0193-8
Cohen, S., Mermelstein, R., Kamarck, T., & Hoberman, H. M. (1985). Measuring the functional components of social support. In Social Support: Theory, Research and Applications. Martinus Nijhoff Publishers. https://doi.org/10.1007/978-94-009-5115-0
Conrad, R., Rayala, H., Diamond, R., Busch, B., & Kramer, N. (2020). Expanding telemental health in response to the Covid-19 pandemic. Psychiatric Times.
Denham, S., Bassett, H. H., & Wyatt, T. (2007). The socialization of emotional competence. In Handbook of socialization (J. Grusec). Guilford Press.
Desiningrum, D. R. (2016). Psikologi anak berkebutuhan khusus (G. Ilmu (ed.); 1st ed.). Psikosains.
Desiningrum, D. R., Suminar, D. R., & Surjaningrum, E. R. (2019). Psychological well-being among mothers of children with autism spectrum disorder: The role of family function. HUMANITAS: Indonesian Psychological Journal, 16(2), 106. https://doi.org/10.26555/humanitas.v16i2.10981
Etournaud, A. (2017). Parents of children with autism spectrum disorder: Investigation into best practice intervention. In Thesis. Bond University.
Farrugia, D. (2009). Exploring stigma: Medical knowledge and the stigmatisation of parents of children diagnosed with autism spectrum disorder. Sociology of Health and Illness, 31(7), 1011–1027. https://doi.org/10.1111/j.1467-9566.2009.01174.x
Garrecht, M., & Austin, D. W. (2011). The plausibility of a role for mercury in the etiology of autism: A cellular perspective. Toxicological and Environmental Chemistry, 93(6), 1251–1273. https://doi.org/10.1080/02772248.2011.580588
Ghozali, I. (2005). Aplikasi analisis multivariate dengan SPSS. Badan Penerbit UNDIP.
Gilbar, O., Benbenishty, R., Schiff, M., & Dekel, R. (2018). Foster parents exposed to political violence: The role of social support in addressing emotional and functional difficulties. Children and Youth Services Review, 85(December 2017), 211–218. https://doi.org/10.1016/j.childyouth.2017.12.026
Gleeson, J. P., Hsieh, C. ming, & Cryer-Coupet, Q. (2016). Social support, family competence, and informal kinship caregiver parenting stress: The mediating and moderating effects of family resources. Children and Youth Services Review, 67, 32–42. https://doi.org/10.1016/j.childyouth.2016.05.012
Grace, A., & Gleasure, R. (2017). Supporting the critical role of family carers in wellness management. Health Policy and Technology, 6(2), 242–249. https://doi.org/10.1016/j.hlpt.2017.04.002
Gray, D. E. (2003). Gender and coping: The parents of children with high functioning autism. Social Science and Medicine, 56(3), 631–642. https://doi.org/10.1016/S0277-9536(02)00059-X
Hartley, S. L., Barker, E. T., Seltzer, M. M., Floyd, F., Greenberg, J., Orsmond, G., & Bolt, D. (2010). The relative risk and timing of divorce in families of children with an autism spectrum disorder. Journal of Family Psychology, 24(4), 449–457. https://doi.org/10.1037/a0019847
Kemenpppa. (2018). Hari Peduli Autisme Sedunia: Kenali gejalanya, pahami keadaannya. https://www.kemenpppa.go.id/index.php/page/read/31/1682/hari-peduli-autisme-sedunia-kenali-gejalanya-pahami-keadaannya
Kuntjoro, R. S. (2002). Dukungan Sosial pada Lansia. Erlangga.
Lambrechts, G., Van Leeuwen, K., Boonen, H., Maes, B., & Noens, I. (2011). Parenting behaviour among parents of children with autism spectrum disorder. Research in Autism Spectrum Disorders, 5(3), 1143–1152. https://doi.org/10.1016/j.rasd.2010.12.011
Lawson, M., Piel, M. H., & Simon, M. (2020). Child maltreatment during the COVID-19 pandemic: Consequences of parental job loss on psychological and physical abuse towards children. Child Abuse and Neglect, 110(July), 104709. https://doi.org/10.1016/j.chiabu.2020.104709
Lu, J., Zhang, C., Xue, Y., Mao, D., Zheng, X., Wu, S., & Wang, X. (2019). Moderating effect of social support on depression and health promoting lifestyle for Chinese empty nesters: A cross-sectional study. Journal of Affective Disorders, 256(November 2018), 495–508. https://doi.org/10.1016/j.jad.2019.04.003
Mangunsong, F. (2011). Psikologi dan pendidikan anak berkebutuhan khusus. LPSP3 UI.
Mann, A. R. (2013). The experiences of mothers of children with autism in Jamaica: An exploratory study of their journey. ProQuest Dissertations and Theses, January, 276. http://scholarcommons.usf.edu/cgi/viewcontent.cgi?article=5919&context=etd
Moes, D. R. (1995). Parent education and parenting stress. In R. L. Koegel & L. K. Koegel (Eds.), Teaching children with autism: Strategies for initiating positive interactions and improving learning opportunities. Paul H. Brookes.
Ono, M., & Honda, S. (2017). Association between social support and child abuse potential among Japanese mothers. Children and Youth Services Review, 73, 88–92. https://doi.org/10.1016/j.childyouth.2016.12.003
Ozturk, Y., Riccadonna, S., & Venuti, P. (2014). Parenting dimensions in mothers and fathers of children with Autism Spectrum Disorders. Research in Autism Spectrum Disorders, 8(10), 1295–1306. https://doi.org/10.1016/j.rasd.2014.07.001
Petrongolo, M. (2014). Stress in mothers of newly diagnosed children with autism spectrum disorders : Barriers to care , use of support services , and child behavior. 1–90. http://digitalcommons.pcom.edu/cgi/viewcontent.cgi?article=1299&context=psychology_dissertations
Poblete, A. T., & Gee, C. B. (2018). Partner support and grandparent support as predictors of change in coparenting quality. Journal of Child and Family Studies, 27(7), 2295–2304. https://doi.org/10.1007/s10826-018-1056-x
Posar, A., & Visconti, P. (2017). Autism in 2016: the need for answers. Jornal de Pediatria, 93(2), 111–119. https://doi.org/10.1016/j.jped.2016.09.002
Pottie, C. G., Cohen, J., & Ingram, K. M. (2009). Parenting a child with autism: Contextual factors associated with enhanced daily parental mood. Journal of Pediatric Psychology, 34(4), 419–429. https://doi.org/10.1093/jpepsy/jsn094
Pratiwi, H., Ismail, M., & Irayana, I. (2021). Efikasi diri, stress pengasuhan dan strategi koping orangtua dari anak berkebutuhan khusus di masa pandemi Covid-19. Jurnal Smart Paud, 4(1), 11–22. https://doi.org/http://dx.doi.org/10.36709/jspaud.v4i1.15341
Russell, S., & McCloskey, C. R. (2016). Parent perceptions of care received by children with an autism spectrum disorder. Journal of Pediatric Nursing, 31(1), 21–31. https://doi.org/10.1016/j.pedn.2015.11.002
Saarni, C., Campos, J. J., Camras, L. A., & Witherington, D. (2007). A conceptual framework for feeling and emotion. In Emotional Development: Action, Communication, and Understanding (pp. 226–234).
Saini, M., Stoddart, K. P., Gibson, M., Morris, R. B., Barrett, D., Muskat, B., Nicholas, D., Rampton, G., & Zwaigenbaum, L. (2015). Couple relationships among parents of children and adolescents with Autism Spectrum Disorder: Findings from a scoping review of the literature. Research in Autism Spectrum Disorders, 17, 142–157. https://doi.org/10.1016/j.rasd.2015.06.014
Santrock, J. W. (2018). A topical approach to life-span development (9th Ed.). McGraw-Hill.
Sarafino, E. P., & Smith, T. W. (2011). Health psychology: Biopsychosocial interactions (7th ed.). Wiley.
Siswati, & Desiningrum, D. . (2019). Kompetensi emosi dan efikasi diri pengasuhan ibu dari anak dengan autism spectrum disorder. Prosiding Temilnas XI IPPI, 613–624.
Spinelli, M., Lionetti, F., Setti, A., & Fasolo, M. (2021). Parenting stress during the COVID-19 outbreak: Socioeconomic and environmental risk factors and implications for children emotion regulation. Family Process, 60(2), 639–653. https://doi.org/10.1111/famp.12601
Sun, X., Allison, C., Auyeung, B., Baron-Cohen, S., & Brayne, C. (2014). Parental concerns, socioeconomic status, and the risk of autism spectrum conditions in a population-based study. Research in Developmental Disabilities, 35(12), 3678–3688. https://doi.org/10.1016/j.ridd.2014.07.037
Tamba, A. (2018). Tren penderita autisme meningkat. http://www.harnas.co/2018/04/01/tren-penderita-autisme-meningkat
Ulofoshio, J. I. (2018). Lived experiences of mothers raising children with autism spectrum disorder in Nigeria. Dissertation Abstracts International: Section B: The Sciences and Engineering, 79(2-B(E)), No Pagination Specified. http://ovidsp.ovid.com/?T=JS&CSC=Y&NEWS=N&PAGE=fulltext&D=psyc14&AN=2018-00726-147 http://eu.alma.exlibrisgroup.com/view/uresolver/44SAL_INST/openurl?sid=OVID:psycdb&id=pmid:&id=doi:&issn=0419-4217&isbn=9780355258806&volume=79&issue=2-B%28E%29&spage=No&pa
Vinkers, C. H., van Amelsvoort, T., Bisson, J. I., Branchi, I., Cryan, J. F., Domschke, K., Manchia, M., Pinto, L., de Quervain, D., & Schmidt, M. V. (2020). Stress resilience during the coronavirus pandemic. European Neuropsychopharmacology: The Journal of the European College of Neuropsychopharmacology, 35, 12–16.
Volling, B. L., Kolak, A. M., & Kennedy, D. E. (2009). Empathy and compassionate love in early childhood: Development and family influence. The Science of Compassionate Love: Theory, Research, and Applications, 161–200. https://doi.org/10.1002/9781444303070.ch6
Walter, S. M., & Smith, M. J. (2016). Mothering a child with autism. Archives of Psychiatric Nursing, 30(5), 600–601. https://doi.org/10.1016/j.apnu.2016.01.016
Weiss, M. J. (2002). Hardiness and social support as predictors of stress in mothers of typical children, children with autism, and children with mental retardation. Autism, 6(1), 115–130. https://doi.org/10.1177/1362361302006001009
Wu, Q., & Xu, Y. (2020). Parenting stress and risk of child maltreatment during the COVID-19 pandemic: A family stress theory-informed perspective. Developmental Child Welfare, 2(3), 180–196. https://doi.org/10.1177/2516103220967937
Xu, Y., Ahn, H., & Keyser, D. (2020). Measuring family-centered practice in child welfare. Families in Society, 101(2), 148–166. https://doi.org/10.1177/1044389420907742
