Proses Menjadi Tangguh Bagi Ibu yang Memiliki Anak dengan Gangguan Spektrum Autis

Nurussakinah Daulay, Neila Ramdhani, Noor Rochman Hadjam

Abstract


Keterbatasan-keterbatasan yang dialami anak dengan gangguan spektrum autis dapat menimbulkan berbagai kesulitan hingga dibutuhkan ketangguhan ibu dalam menjalankan pengasuhan. Tujuan penelitian ini adalah untuk mengkaji pengalaman ibu hingga menjadi sosok yang tangguh selama mengasuh anak autis. Penelitian ini menggunakan pendekatan fenomenologi dan melibatkan lima orang responden penelitian. Hasil penelitian menemukan enam tema pengalaman ibu yang menjadikan mereka tangguh dalam mengasuh anak dengan gangguan spektrum autis, yaitu:  1) kondisi sulit, menekan, dan bertahan; 2) dukungan sosial; 3) pengetahuan dan informasi terkait anak dengan gangguan spektrum autis; 4) religius coping; 5) kebermaknaan hidup orang tua anak dengan anak berkebutuhan khusus; 6) optimisme. Sumber daya penentu berasal baik dari internal yaitu kemampuan mengontrol diri, keyakinan akan kemampuan diri, dan religious coping, maupun eksternal yaitu dukungan sosial, merupakan faktor utama yang memengaruhi ibu untuk tetap bertahan dalam mengasuh anak. 

 


Keywords


dukungan sosial, koping religius, optimis, spektrum autis, tangguh.

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References


Abidin, R. R. (1995). Parenting stres index-profesional manual. (3rd ed.). Odessa FL: Psychological Assessment Resources.

American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders, 5th edition. (DSM-5 TM). Washington, DC: American Psychiatric Association.

Baumrind, D., & Thompson, R. A. (2002). The ethics of parenting. In M. H. Bornstein (Ed.), Handbook of Parenting Volume 5 Practical Issues in Parenting (Second Ed, Vol. 5, pp. 3–34). New Jersey: Lawrence Erlbaum Associates.

Benson, P. R., & Kersh, J. (2011). Marital quality and psychological adjustment among mothers of children with ASD : Cross-sectional and longitudinal relationships. Journal of Autism and Developmental Disorders, 41, 1675–1685. http://doi.org/10.1007/s10803-011-1198-9

Biggerstaff, D., & Thompson, A. R. (2008). Interpretative phenomenological analysis (IPA): A qualitative methodology of choice in healthcare research. Qualitative Research in Psychology, 5(3), 214–224.

Boyd, B. A. (2002). Examining the relationship between stres and lack of social support in mothers of children with autism. Focus on Autism and Other Developmental Disabilities, 17(4), 208–215.

Bromley, J., Hare, D. J., Davison, K., & Emerson, E. (2004). Mothers supporting children with autistic spectrum disorders. Autism, 8(4), 409–423. http://doi.org/10.1177/1362361304047224

Corrigan, P., McCorkle, B., Schell, B., & Kidder, K. (2003). Religion and spirituality in the lives of people with serious mental illnes. Community Mental Health Journal, 39(6), 487–499.

Dababnah, S., & Parish, S. L. (2013). Children and youth services eeview“ At a moment, you could collapse” : Raising children with autism in the West Bank. Children and Youth Services Review, 35(10), 1670–1678. http://doi.org/10.1016/j.childyouth.2013.07.007

Doussard-Roosevelt, J. A., Joe, C. M., Bazhenova, O. V., & Porges, S. W. (2003). Mother-child interaction in autistic and nonautistic children: Characteristics of maternal approach behaviors and child social responses. Development and Psychopathology, 15(2), 277–295. http://doi.org/10.1017/S0954579403000154

Gau, S. S., Chou, M., Chiang, H., Lee, J., Wong, C., Chou, W., & Wu, Y. (2012). Parental adjustment, marital relationship, and family function in families of children with autism. Research in Autism Spectrum Disorders, 6(7), 263–270. http://doi.org/10.1016/j.rasd.2011.05.007

Gray, D. E. (2006). Coping over time: The parents of children with autism. Journal of Intellectual Research, 50(12), 970–976. http://doi.org/10.1111/j.1365-2788.2006.00933.x

Kuhn, J., & Carter, A. S. (2006). Maternal self-efficacy and associated parenting cognitions among mothers of children with autism. American Journal of Orthopsychiatry, 76(4), 564–575. http://doi.org/10.1037/0002-9432.76.4.564

Lambert, N., Fincham, F., & Stillman, T. (2011). Gratitude and depressive symptoms: The role of positive reframing and positive emotion. Journal of Cognition and Emotion, 26(4), 615–633. http://doi.org/10.1080/02699931.2011.595393

Lee, C.-Y., Anderson, J. R., Horowitz, J. L., & August, G. J. (2009). Family income and parenting: The role of parental depression and social support. Family Relations, 58(4), 417–430. http://doi.org/10.1111/j.1741-3729.2009.00563.x

Li-Ching, L., Harrington, R. A., Louie, B. B., & Newschaffer, C. J. (2008). Children with autism : Quality of life and parental concerns. Journal of Autism and Developmental Disorders, 38, 1147–1160. http://doi.org/10.1007/s10803-007-0491-0

McConnell, D., Savage, A., & Breitkreuz, R. (2014). Resilience in families raising children with disabilities and behavior problems. Research in Developmental Disabilities, 35(4), 833–848. http://doi.org/10.1016/j.ridd.2014.01.015

McDermott, D. (2008). Developing caring relationship among parents, children, schools, and communities. California: Sage Publications, Inc.

McStay, R. L., Trembath, D., & Dissanayake, C. (2014). Stres and family quality of life in parents of children with autism spectrum disorder : Parent gender and the double ABCX model. Journal of Autism and Developmental Disorders, 44, 3101–3118. http://doi.org/10.1007/s10803-014-2178-7

Moustakas, C. (1994). Phenomenological research methods. California: Sage Publications, Inc.

Navot, N., Jorgenson, A. G., Stoep, A. Vander, Toth, K., & Webb, S. J. (2015). Family planning and family vision in mothers after diagnosis of a child with autism spectrum disorder. Autism, 1–11. http://doi.org/10.1177/1362361315602134

Ogretir, A., & Ulutas, I. (2009). The study of the effects of the mother support education program on the parental acceptance and rejection levels of the Turkish mothers. Humanity and Social Science Journal, 4(1), 12–18.

Oprea, C., & Stan, A. (2012). Mothers of autistic children. How do they feel? Procedia - Social and Behavioral Sciences, 46, 4191–4194. http://doi.org/10.1016/j.sbspro.2012.06.224

Pastor-Cerezuela, G., Fernández-andrés, M. I., Tárraga-mínguez, R., & Navarro-peña, J. M. (2015). Parental stres and ASD : Relationship with autism symptom severity, IQ , and resilience. Focus on Autism and Other Developmental Disabilities, 1–12. http://doi.org/10.1177/1088357615583471

Pruitt, M. M., Willis, K., Timmons, L., & Ekas, N. V. (2016). The impact of maternal , child , and family characteristics on the daily well-being and parenting experiences of mothers of children with autism spectrum disorder. Autism, 1–13. http://doi.org/10.1177/1362361315620409

Quintero, N., & McIntyre, L. L. (2010). Sibling adjustment and maternal well-being : An examination of families with and without a child with an autism spectrum disorder. Focus on Autism and Other Developmental Disabilities, 25(1), 37–46. http://doi.org/10.1177/1088357609350367

Rao, P. A., & Beidel, D. C. (2009). The impact of children with high-functioning autism on parental stres, sibling adjustment, and family functioning. Behavior Modification, 33(4), 437–451. Retrieved from http://online.sagepub.com

Samadi, S., McConkey, R., & Bunting, B. (2014). Parental wellbeing of Iranian families with children who have developmental disabilities. Research in Developmental Disabilities, 35(7), 1639–1647. http://doi.org/10.1016/j.ridd.2014.04.001

Samadi, S., McKonkey, R., & Kelly, G. (2012). Enhancing parental well-being and coping through a family-centred short course for Iranian parents of children with an autism spectrum disorder. Autism, 17(1), 27–43. http://doi.org/10.1177/1362361311435156

Selye, H. (1974). Stres without distres. Philadelphia: Lippincott.

Serrata, C. A. (2012). Psychosocial aspects of parenting a child with autism. Journal of Applied Rehabilitation Counseling, 43(4), 29–36.

Ślifirczyk, A., E, K.-K., Brayer, A., & Maciorkowska, E. (2013). The impact of the disease on functioning of a family with an autistic child. Progress in Health Sciences, 3(2), 122–129.

Subandi. (2012). Agama dalam perjalanan gangguan mental psikotik dalam konteks budaya Jawa. Jurnal Psikologi, 39(2), 167–179. Retrieved from https://repository.ugm.ac.id/id/eprint/97109

Wang, P., Michaels, C. A., & Day, M. S. (2011). Streses and coping strategies of chinese families with children with autism and other developmental disabilities. Journal of Autism and Developmental Disorders, 41, 783–795. http://doi.org/10.1007/s10803-010-1099-3

Weiss, J. A., Macmullin, J. A., & Lunsky, Y. (2015). Empowerment and parent gain as mediators and moderators of distres in mothers of children with autism spectrum disorders. Journal of Child and Family Studies, 24, 2038–2045. http://doi.org/10.1007/s10826-014-0004-7

Zablotsky, B., Bradshaw, C. P., & Stuart, E. A. (2013). The association between mental health, stres, and coping supports in mothers of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 43, 1380–1393. http://doi.org/10.1007/s10803-012-1693-7

Zaidman-Zait, A., Mirenda, P., Duku, E., Szatmari, P., Georgiades, S., Volden, J., … Thompson, A. (2014). Examination of bidirectional relationships between parent stres and two types of problem behavior in children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 44, 1908–1917. http://doi.org/10.1007/s10803-014-2064-3




DOI: http://dx.doi.org/10.26555/humanitas.v15i2.8695

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HUMANITAS: Indonesian Psychological Journal
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